Colin Farrell Foundation launched in honour of son James

Farrell hopes to improve support for adults with Angelman syndrome

The Irish actor has spent much of the past two decades raising his eldest son while building a successful career in Hollywood. 

Now, as James enters adulthood, Farrell wants to help other families facing the same challenges find the support they need.

Speaking to People magazine, the 50-year-old explained that the charity would focus on people with Angelman syndrome as they grow older. 

Angelman syndrome is a rare genetic condition that can affect movement, speech and development.

Support can become harder to access once they move beyond childhood, leaving families with new questions about care and independence.

Farrell said James's 20th birthday had prompted him to think more seriously about what lies ahead.

“I suppose the reason why we're establishing the foundation now is that James is of an age – he's 20 – and he's had an extraordinary 20 years,” he said.

'He’s fought very hard'

Farrell has spoken about the considerable effort his son puts into reaching milestones that many people might take for granted.

He highlighted how much work can go into achieving everyday tasks, describing them as the most “menial” or typical things.

Despite the difficulties associated with the condition, Farrell said James had made significant progress and was doing well.

“James has fought very hard to achieve certain benchmarks, and he's done incredibly well. He's a really well-adjusted, really happy young man,” the actor said.

However, his focus is now shifting towards ensuring his son has the right support throughout adulthood. 

Through the new foundation, Farrell hopes to help address that question for James and others living with Angelman syndrome.

He also wants to bring greater attention to the needs of adults with the condition and the families supporting them.