Cystic Fibrosis campaigner Orla Tinsley gets the go-ahead for double lung transplant
Irish Cystic Fibrosis campaigner Orla Tinsley has revealed that she has got the go-ahead for a double lung transplant.
In the early hours of Thursday morning, Tinsley tweeted to say: “This morning we got a call but I wanted to wait. Well, here it is, Lucky Number7. I’m not afraid..Please send love, prayers and best wishes. Double lung transplant is a go! Love love love #BEATCF”
This morning we got a call but I wanted to wait. Well, here it is, Lucky Number7. I’m not afraid..Please send love, prayers and best wishes. Double lung transplant is a go! Love love love #BEATCF
— Orla Tinsley (@orlatinsley) December 21, 2017
Tinsley, a Kildare native living in New York, posted on social media earlier this week to say that she was “on life support fighting intensely” and praised the efforts of staff at New York Presbyterian Hospital while posting a picture of her oxygen mask on Instagram.
View this post on Instagram
This is a picture of my oxygen mask. It feels pretty apt to update with this as my entire focus now is on breathing. I am struggling a lot but I am strong and hopeful. You see, I’m a ninja. They don’t quit and they are adaptable to all situations. They karate chop their way with stealth, fancy foot work and a determined mind.I have an incredible team @nyphospital who are working intensely around the clock to keep me alive. We are hopeful that lungs are coming. My family are with me and we just need those lungs to come. Thanks everyone for your love and prayers and best wishes. Love, Orla
Tinsley had previously received six calls about a potential double lung transplant, but none of the potential donors were a suitable match; her tweet prompted an outpouring of good wishes when she posted it early on Thursday morning.
Orla we wish you all the very best and send you so much love from all your friends in Temple Street #ninjamoves
— Temple Street (@Temple_Street) December 21, 2017
Tinsley has actively campaigned for better treatment for people with Cystic Fibrosis - a condition that affects 1,200 people in Ireland - for years and has written about it in the Irish Times since 2005.
Tinsley’s activism helped draw attention to the issue at national level in Ireland and was a factor in the opening of a dedicated Cystic Fibrosis unit at St. Vincent’s Hospital in Dublin in 2012.