All people with Cystic Fibrosis are currently designated 7th of 15 priority categories for Covid-19 vaccination. Cystic Fibrosis Ireland (CFI) has urged its members to get in contact with TDs over vaccination priority. As it stands, all people with CF are currently designated 7th of 15 priority categories for the Covid-19 vaccination. CFI has said […]

5 years ago

Scully, who has Cystic Fibrosis, currently holds the European record. On Sunday, he looks to beat the odds once more. Born with Cystic Fibrosis, Evan Scully has defied the odds. Doctors said that he likely wouldn’t live past 10 years of age. Now 32 – the average life expectancy in Ireland for someone living with […]

7 years ago

13 April marks Cystic Fibrosis Ireland’s annual fundraising appeal, 65 Roses Day. The appeal, rather sweetly, gets its name from the way children with this condition often mistakenly say the words “cystic fibrosis”. Ireland has the highest incidence of CF per head of population and some of the most severe types of the condition in the […]

8 years ago

A great Christmas present. Irish Cystic Fibrosis campaigner Orla Tinsley has revealed that her double lung transplant operation was a success. Posting a message to her Twitter on St. Stephen’s day, Tinsley tweeted to say, “I now have shiny new lugs and spent yesterday, with my family, thinking of my donor and their family. I […]

8 years ago

Fantastic news. Irish Cystic Fibrosis campaigner Orla Tinsley has revealed that she has got the go-ahead for a double lung transplant. In the early hours of Thursday morning, Tinsley tweeted to say: “This morning we got a call but I wanted to wait. Well, here it is, Lucky Number7. I’m not afraid..Please send love, prayers […]

8 years ago

A tale that will break your heart and lift your spirit all in one. Ed Sheeran was the name on all Irish people’s lips last week as he performed two sold-out gigs at the 3 Arena, recorded the music video for his single, ‘Galway Girl’ in Galway and appeared on various Irish radio stations in […]

9 years ago